Claiming The Space

I feel like it is only fitting that I should use my very first blog post to explain who I am and why this blog exists.  

My name is Hannah.  I am 22, and a college student.  To understand why I am writing this blog, there is only one thing you really need to know about me, and that is this:  My life thus far has been shaped by one thing above all others- the fact that I have Chronic Lyme Disease.  Not that my education, family, and upbringing aren’t equally as influential- they are, but the thing about a chronic illness is that it has a tendency to mess with every single long term plan.  Every single one.  Highschool?  nope, can’t do that.  Friends?  expect to cancel often.  College?  a work in progress.

For 10 years, I have been attempting to treat this illness, and here is the info broken down into some facts:

  • 27 different antibiotics
  • 100+ different supplements
  • 3+ years in bed
  • 2 LLMD’s, 3 naturopaths, 3 eye doctors, 2 chiropractors, 2 osteopaths, 2 neurologists, 1 foot doctor, various other specialists 
  • 1 ER trip (lucky it wasn’t more), 3 almost visits (I changed my mind :p)

My symptoms include:  fatigue, stomach pain, nausea, panic attacks, muscle cramps, muscle twitching, joint pain, vision problems, headaches, memory problems, brain fog, difficulty concentrating, shortness of breath, difficulty sleeping, racing heartbeat, chest pain…. I could go on and on.  

The rest can’t be easily fit into little bullet points.  Like any chronic illness, much of what I have experienced is unique to me.  That being said, none of us are alone.  I have learned ways of coping in the years that I have been ill, and have found that talking with other people who are sick is extremely helpful.  I have learned a lot about how to deal with the symptoms, medicines, and intense lifestyle changes that come with a chronic illness.  

I firmly believe that health is not just a state of being, but a way of living.  It is not enough to just take the medicine and hope.  Because I am sensitive to so many things in the world around me, I have had to find the healthiest options available to me.  One thing I am passionate about is finding healthier alternatives to makeup and beauty products. Eating the cleanest food available, drinking the purest water, spending time outside and with family and friends.  Finding what you love, and holding on tight.  

 

So that, in a nutshell, is why I am making this blog.  I have begun to worsen, and as a result I am redoubling my efforts.  Ahead of me is a bigger, more intense lifestyle change than I have had to make in the past, and I can only hope that my efforts will be enough this time.  This blog is a place for me to chronicle my future journey towards beating this disease, as well as share all the knowledge I have gained thus far.  Expect posts on coping, healthy lifestyle, and beauty products.  Plus other miscellaneous stuff, because life isn’t all gloom and struggle.  The high points are just as important.   

I would love to hear from you in the comments, if anyone is out there reading this.  

xoxo

Hannah